Rules and Regulations

FAQs

What is a Forum?
Is it safe?
What can I discuss?
How much is it?
How do I join?
Why do I have to wait for a welcome letter? Why can't I enter now?
I'm not an ASBAH service but want to be a YV Forum user, is this possible?
Are my details confidential?
I'm an existing member and forgotten my password!
Who runs the YV Forums?

What is a Forum?

A forum is an online community for people with SB/H. Anyone with SB/H over the age of 18 can join, from anywhere in the world.

Is it safe?

It's a safe and secure community, which means that only people with SB/H, or carers of people with SB/H who can't use a computer themselves, are allowed to join. We do not allow casual visitors to enter the community.

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What can I discuss?

The YV Forum enables you to discuss anything and everything with other people who have SB/H. It has a forum with areas to view news and events or to discuss subjects important to you.

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How much is it?

Nothing. It's free!

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How do I join?

  • Click on How to join Your Voice and fill in the details (for security reasons please do not use your real name as your username), click on submit, you will then receive a confirmation email.
  • Wait for your welcome letter to arrive in the post.
  • Email us confirming the details the letter asks for.
  • Wait for an email from us, letting you know that you have access to the YV forum.

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Why do I have to wait for a welcome letter? Why can't I enter now?

Because the YV forum is only for people with spina bifida and or hydrocephalusYour welcome letter and confirmation system is a way of keeping the YV forum secure.

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I'm not an ASBAH service but want to be a YV Forum user, is this possible?

By joining the YV forum you automatically become a FREE online member of The Association for Spina Bifida and Hydrocephalus. Free membership gives you access to the YV forum and interactive forums on the main ASBAH site when available.

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Are my details confidential?

Your information is confidential and will not be available to other on line members. We look forward to welcoming you as a member.

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I'm an existing member and forgotten my password!

Forgotten your password? click here

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Who runs the YV Forums?

The forum is run by Your Voice, but you control what subjects are discussed.

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Terms and Conditions of Use

  • You must treat other members with respect. Anyone using forums in unacceptable ways will be barred. We decide what is acceptable.
  • You must not post obscene, insulting, harmful or deliberately false information.
  • You must not use the forums for commercial purposes or to promote any specific goods or services.
  • You must not use the forums for illegal purposes.
  • You must respect copyrights. Some of the information used here may be copyright of YV Forums,
  • ASBAH or our sources. It may be used and viewed online, but it may only be passed on in ways covered by “fair use”.
  • We will keep your profile information private. YV and ASBAH may use the information you give us for our statistics and to improve our services but we will not identify you or any other forums members to anyone outside the forum without your permission. The YV Fourms is bound by our Privacy Policy.
  • Anything you post in forums is public. If you post information that could be useful for people outside of the forum we may use it to develop research databases, articles, promotional material and testimonials, and other things we need for our activities. Unless you give us permission to identify you, we’ll make sure you remain anonymous.
  • We cannot provide medical advice. We are not responsible or liable for:
    1. the accuracy or effectiveness of any suggestions that people make
    2. treatments people suggest
    3. any other information in the forums
    4. information in the forums that is wrong or incomplete.
  • You should ask your doctor to advise you on medical treatment and to evaluate any information you find here before using it as part of a treatment. Although you may find some helpful insights here, if you are feeling depressed or in need of counselling, please seek qualified help.
  • You agree we can change the rules. If we do change the rules, we’ll notify our members by e-mail before the changes take effect.

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YV can be contacted at barbarar@asbah.org.uk or YV, 42 Park Road, Peterborough, PE1 2UQ. Tel: (01733) 555988 Fax: (01733) 555985